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My brother Matthew was diagnosed with MND.
This is a fatal disease of the nervous system. Slowly the body deteriorates.The ability to walk, talk, dress and even swallow affected.
The mind and senses are not affected, Matt and people like Matt know exactly what is happening to their bodies. They still feel pain like the cramping of muscles that can't be moved. Tragically there is nothing they can do to stop it. The average life expectancy from diagnosis is 2-5 years, although Matt assures us he will be around for many more years to come.
Matt, Zara, Harriet, Damian and Margot are surrounded by family who love and support them, this helps Matt keep a positive attitude as his body sucumbs to the disease. As this disease progresses Matt will need care and support that are beyond typical families.
- Simon Fraser
A few words from Matthew
I have accepted the fact that I am dying. My fight is to remain on this earth long enough for my children to have strong and lasting memories of a Dad, who may not have been able to play in the garden with them, kick a ball, play roughhouse or do very good arts and crafts, but a Dad who laughs a lot, knows how to do neat stuff on the ‘puter and a Dad who they know will always be there looking after them, and later in their life…over them.
However, it was Sister Mary Kathleen Costello who once said, “you can never have too many prayers said for you”…and if you are the praying type I would certainly love a few Hail Mary’s and a few Our Father’s said for us.
The average life expectancy from diagnosis is 2-5 years.
I need your help to ensure those memories are made.
As the disease progress I require more and more specialist help which unfortunately is not free nor is it provided for by the Health Authorities. If you would like to help financially then please go to my help page where I describe what it is I need as my condition deteriorates. Any contribution/donation towards any of the areas I need help with is hugely and humbly welcomed.